Avery's neurologist just came in and we spoke. He is not against doing the decompression surgery, but wants
them to rule out everything else. They are talking about a tracheostomy and ventilator. I expressed to him that before that happens the decompression surgery should be done to see if it helps. I know its a major surgery but so is cutting a hole in Avery's throat. Avery is still wheezing quite a bit, breathing treatments are not helping. I'm not sure what they are going to do at this point.
Amber you have been on my mind like crazy! I am so sorry that Avery is going through all of this right now. I pray for wisdom for the doctors and for you to have peace while you wait and wonder.
ReplyDeleteWe are all praying for Miss Avery! We LOVE you ALL!
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