Today we met with the medical equipment company at our new house. They brought us a months worth of supplies for Avery. I had no idea she would need so much stuff. After 3 hours of learning the equipment and all her supplies, Jeremy headed to school and I went to the hospital. Avery was scheduled for a full brain and spine MRI at 3:30pm today. Since Avery has been in the hospital we have noticed her losing function in her right leg as well as her trunk. One of the things the doctors will be looking for with the MRI is a tethered cord, which could be the cause of her function loss. If you want to know more about tethered cord.
http://www.ninds.nih.gov/disorders/tethered_cord/tethered_cord.htm
I got to the hospital at 2:30pm. By 5:30pm Avery was getting a bit fussy since her milk feeds were stopped at 10am and she was hungry. She did recieve some pedialyte at 1pm, but then nothing since. Her and I paced the floors until she fell asleep at 7:30pm, still no MRI. At 9:30pm I finally had enough and had the nurse call down to radiology. They had canceled Avery and rescheduled for tomorrow morning. Sure would have been nice to know this sooner. The MRI will be the deciding factor on whether Avery will come home on Thursday or not. Please pray that her MRI comes back negative so we can get our little girl home.
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