Tuesday, February 19, 2013
Avery is doing good, mom not so much!
I recently posted about Avery's upcoming procedures (bronchoscopy, tubes in ear, tonsils and adenoids removed.) I did not get the information I was hoping for and have been pretty frustrated ever since. Avery did not need tonsils or adenoids removed. She did have tubes put in her ears and granular tissue removed from her trachea where the end of her trach is rubbing. After the procedure the Dr. came and told me everything. I asked since her tonsils and adenoids didn't need to be removed what is causing the obstructive apnea. He said it looked like her tongue is falling back while she sleeps. Okay, so what can we do about it. He says there is a surgery that can be done where they put a screw at the bottom of her chin and tack down her tongue, this can only be done after her big teeth have grown in. WHAT!!!! Really that's my option, keep her trach until she is 7-8 years old. Dr. said I should be lucky that Avery has a good airway with her trach. Easy for this man to say since he doesn't live with a child that is trached and has no idea the work that goes into it. Okay! Okay! You can probably hear my frustration. I have spent many hours researching and educating myself on Pediatric sleep apnea. In hopes I can go to our next appt. and have something to back up my opinion on Avery's situation. I am in the process of a second opinion as well, the more information the better.