After 2 hours of sleep last night and only being able to see my baby girl before bed, I was up ready to go this morning. We went down to the NICU at 10:30am and I was able to hold Avery, such a joy. We were told that an ultrasound was done on Averys back and head to see about the hydrocephalus and her spine. They let me start nursing right away since they were unsure when her surgery would be, I have nursed every two hours all day long, in between seeing the anestisiologist, plastic surgeons, and neurologists. Busy day not a lot of time to rest, boy has it caught up to me. The last few nursing sessions have been difficult, because of Averys open wound on her back, as the day progressed her back became more sensitive due to trying to nurse her. So her last feeding which was 10pm, I gave her a bottle so I wouldn't have to move her, she seemed much happier. All the pediatric neurologists are in Denver at a conference, one is flying home tonight and the surgery is scheduled for 2pm tomorrow. They said the surgery will take about 3-4 hours. Avery will then have to remain on her tummy for approx. 3 days. Still no signs of hydrocephalus, but that can change after the surgery. Otherwise she is doing so well, she coos a lot, as if telling you her life story. We also met with the physical therapist today and he has shown us how to do some stretching and massaging on Averys clubbed foot. Well off to bed, I am exhausted. More to come tomorrow.